Marina R. Román and Diana Rodríguez.
Incredulity and distress are the most usual reactions from family members of patients who have just been diagnosed with dementia, not forgetting the profound lack of information.
The people affected usually turn to associations of family members in order to obtain information about their new situation and the behavioural patterns they need to follow.
Giving advice to family members represents one of AFAGA’s basic objectives. As reflected in Article 6 of our Statute, AFAGA will inform, educate, advice and help the affected people with promoting actions and programmes so as to improve families’ situation and ensure a better assistance for Alzheimer’s and dementia patients. Thus, most of the family members feel the need to be informed. This need can be oriented toward two different directions:
- General issues such as medical aspects, more adequate answers to patient’s reactions, basic health care…
- Specific services request: home assistance service, stimulation therapy, psychological therapy…
However, it is noted that most cases are a mix of both requests since the lack of information affects all the disease’s aspects. So once the family members are aware of the kind of therapies that can improve the patient’s quality of life, they search for the better means for their patient.
When somebody contact us, the demand for advice is channelled by our social workers, who either offer the most suitable information through books, videos, flyers… or inform about AFAGA programmes and how patients can get access to similar public and private resources.
Telephone number: (0034) 986 22 97 97
E-mail: email@example.com / firstname.lastname@example.org
Contact Persons: Diana Rodríguez and Marina R. Román